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2:46
YouTube
National Foundation for Ectodermal Dysplaisas
Elizabeth's Unique Ectodermal Dysplasia Story
In Elizabeth鈥檚 story, you鈥檒l see what it鈥檚 really like to live with ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome. From an early age, she faced challenges with her skin, teeth, webbed hands, vision, and body temperature. Her family often wondered how she would find her place. But everything changed when they found the NFED. At ...
2 weeks ago
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